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پیر 24 نومبر 2003Monday, November 24, 2003
CRVO
If you were wondering why I ranted about God or why my family is pressuring me to not spend so much time on the computer, you should really get a life. grin. I guess I am going to tell you in any case.
WARNING: Reading medical info can be bad for a layperson. Read at own risk.
The reason is CRVO in my right eye. That is central retinal vein occlusion. Here is a basic description:
The retina of the eye is the sensory organ for vision. If the eye is compared to a camera, the retina would be the film where the “picture” is formed. Proper blood circulation is needed for the retina to function. Normally, blood flows into the retina through the Central Retinal Artery and leaves the eye through the Central Retinal Vein. Both of these blood vessels enter the eye through the optic nerve.
CRVO is caused by a blood clot in the vein that drains the blood from the retina of the eye. The arterial blood enters the retina but cannot leave it due to a blockage in the vein.
As a result, blood and fluid are backed up into the retina, which causes a loss in vision. Over time, the blood vessels in the retina may close leading to further loss of vision with the possible development of new abnormal blood vessels. These new vessels may cause a very painful type of glaucoma and lead to total blindness. Traditionally, there has been no reliably effective treatment to prevent the loss of vision or to improve vision once it has been lost.
Patients with high blood pressure, diabetes, or glaucoma are at an increased risk for developing CRVO. One researcher estimates that approximately 60,000 people develop a CRVO each year in the United States.
The risk factors for CRVO are old age, diabetes, high blood pressure, etc. However, some young healthy adults, like me, also get this disease due to unknown reasons. In that case, it is sometimes known as Papillophlebitis.
I noticed it more than 3 weeks ago in the form of a couple of floaters (i.e., small dark spots in my right eye) and it was diagnosed a day before I wrote that rant. The floaters changed to a dark web in the upper visual field in my right eye. It was very annoying at first, but I got used to it or it got better and I don’t even notice it most of the time now.
Today, I had an appointment with a retina specialist who dilated my pupils and shone lots of light into my eyes. He also did Fluorescein Angiography. The results are hopeful, though I have to see him every month.
There are two kinds of CRVO: ischemic and non-ischemic.
Nonischemic CRVO is the milder form of the disease. It may present with good vision, few retinal hemorrhages and cotton-wool spots, no relative afferent pupillary defect, and good perfusion to the retina. Nonischemic CRVO may resolve fully with good visual outcome or may progress to the ischemic type.
Ischemic CRVO is the severe form of the disease. CRVO may present initially as the ischemic type, or it may progress from nonischemic. Usually, ischemic CRVO presents with severe visual loss, extensive retinal hemorrhages and cotton-wool spots, presence of relative afferent pupillary defect, poor perfusion to retina, and presence of severe electroretinographic changes. In addition, patients may end up with neovascular glaucoma and a painful blind eye.
Ischemic is a dangerous and more severe form which often leads to complications and very poor vision. Non-ischemic CRVO is a mild or benign disease. However, it might progress to ischemic CRVO over time. The risk of that happening is about 12% within 18 months of the onset of CRVO. That is why it is important to regularly monitor my non-ischemic case.
There are some experimental treatments but no real treatment. In the ischemic case, doctors usually treat complications while for the non-ischemic, they just monitor the patient. In quite a few non-ischemic cases, the blocking of the vein clears itself and there is no major loss of vision.
To make things more interesting, I have minimal vision in my left eye.
NEXT: Update here.
Posted by Zack at November 24, 2003 3:39 PM in Life
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Comments
Posted by: razib (110 comments) at November 25, 2003 1:18 AM
I hope that your eyesight will improve and the doctors can find a cure for this for you. Take care of yourself and let me know if there’s anything I can do to help you, inshallah. :-)
Posted by: Al-Muhajabah (260 comments) at November 25, 2003 2:24 AM
Zack, I hope that you get better soon.
I have never prayed in my life so hard as I have parayed now for your complete recovery.
I have a frined who I told that you got CRVO in your right eye and that your left eye already had almost no vision and next I know her mom was in tears praying for you and she have not even met you.
Being the believer, I have so much faith in Allah and so my heart tells me that my prayers and prayers of the family and friends will be answered (Amin).
I have faith that prayers will not only improve the CRVO impacted eye but Allah the most merciful will also arrange means for your long gone vision
to return in your left eye as well.
Hang in there..the difficult time will end soon..inshallah
Best wishes and good luck.
Posted by: Ambrin (8 comments) at November 25, 2003 11:18 AM
Hi Zack,
Hope and pray that you have a swift and complete recovery.
May Allah be with you in the time of trial.
Allah Hafiz,
Bilal
Posted by: Bilal Waqar (1 comments) at November 25, 2003 1:48 PM
Good luck, Zack.
Posted by: Andrew Northrup (39 comments) at November 25, 2003 2:51 PM
Thanks, guys.
Posted by: Zack (1792 comments) at November 25, 2003 5:48 PM
To paraphrase a book I’ve been reading, write me down with those who are wishing you a speedy recovery.
Posted by: David Ross (3 comments) at December 8, 2003 6:19 PM
David: Thanks.
Posted by: Zack (1792 comments) at December 9, 2003 1:49 AM
Hi zack,
I got nailed with CRVO about 6 months ago too. I am 59 and in relatively good health but had high intraocular pressure that was never really taken care of. My fault all the way. Anyway, about the same time I got this CRVO, I got bitten by a tick and began getting a mild case of Lymes Disease. This was interesting because one night I woke up and I could see perfectly. When I went in to see the doctor about the Limes disease, he was telling me that ticks inject an anticoagulant into your body so that the blood comes to the surface and they can suck it out. I wonder if this anticoagulant treatment, using the chemical that ticks inject, would resolve the clots we have in the vein? I am going to pursue this and see. By the way, the vision clouded up again the next day but when it cleared up, I could see perfectly. It might be a fluke but I am going to see if I can find someone using TPA or something like that to resolve these clots. Good luck with yours.
Posted by: Rck Jackson (1 comments) at August 3, 2004 9:18 PM
Rck: Best of luck.
My vision cleared up a few months ago. My doctor has put me on baby aspirin as an anti-coagulant, though the clot cleared up before I started that.
Posted by: Zack (1792 comments) at August 4, 2004 1:41 AM
My mom is 59 and has had two stokes followed by several minis. Total time roughly 1 yr ago.She has been diagnosed with CRVO also Ischenia, macular degeneration. Her vision is now 20/70 which after surving web doesnt seem too bad for retianl vein occlusion. SHe has clot near her brain and also a veinthat is blocked. Doc did steroid shot and reliefed pressure for 2 months and also did laser which hasnt helped. Clot is 4 dimes size. She has blood that she can see going thru her eye and also it drains down her thraot causing her to vomit blood. Doc in SC reffered her to Augusta specialist but cant see her till Sept. Mom says she is walking time bomb and guys I am feeling very desperate. Can anyone advise or share with me familar cases that might be helpful? Mom does have high blood pressure. She is experiencing memory loss and I try to tell her she has always had bad memory but she is really starting to scare me. When I came across this sight last night I was hoping someone could share knowledge with me that can help my Moma. Thanks
Jackie in Ga
Posted by: Jackie (1 comments) at August 4, 2004 7:16 AM
Jackie: Sorry to hear about your mom’s illness. Hope she gets better.
I can’t help you with any info about strokes, but I found this website about CRVO quite useful.
Posted by: Zack (1792 comments) at August 4, 2004 10:01 PM
ZACK. God plsue you man. My dad is haveing the same problem Dr Davied ZACK at MIchigan is the Doctor to see for this. he is the top doctor and his research is foucsed on CRVO.
thansk
Posted by: sami (1 comments) at August 17, 2004 11:16 AM
hello, i was writing to say my husband has been diagnosed with pappillophlebitis. Just 2weeks ago, it is so scary when you know that the docs dont know what causes it and when it will go away.If you can give us more info on it or anything more. Please let us know. Thanks sighned concerned
Posted by: Cynthia (1 comments) at September 8, 2004 6:34 PM
Cynthia: Sorry to hear about your husband’s CRVO. I hope and pray that he gets better. Mine resolved by itself in a couple of months.
I don’t have much information myself. I would suggest talking to a retina specialist.
On the internet, there are also quite a few websites about CRVO. Some CRVO patients find support in other patients’ stories here.
Best of luck.
Posted by: Zack
(1792 comments) at September 8, 2004 8:11 PM
I have crvo - was in Kuwait, went to 5 doctors, then to one in France - All said nothing could be done. My family did research in the States because since Nov. 5 2004 my eye continued to get worse. I went to the States and had surgery - cannulation with injection of TPA with cortisone injection, Dec.22,2004. The blood in my eye is clearing up and my vision has improves steadily.
There are alot of doctors who are not up tp date with new treatments. This treatment is done only in the US.
Feb. 18,2005
Posted by: becky (1 comments) at February 18, 2005 2:27 PM
becky: Good to hear that your surgery went well. Hope you get well.
Posted by: Zack (1792 comments) at February 22, 2005 11:46 PM | PGP Sig
Hi I am only 23 and I just found out I got CRVO and I am so scared to loss my vision …. I pray that is goes away, it will wont it???”
Posted by: Diana (1 comments) at January 6, 2007 10:21 PM
Diana: Sorry to hear that. Hope your eye(s) get better.
Posted by: Zack (1792 comments) at January 7, 2007 8:02 PM | PGP Sig
I am 65 and recently had a CRVO in my right eye. This is sort of a re-occurance of the same thing which happened in my early 20’s (ancient times). The treatment back then consisted of a 4 month hospital stay (I was in the US Navy) and anti-coagulant treatment for several months while in the hospital. Things cleared up, but I had some scarring of the retina, but was correctable to 20/30 when my eyes began to need glasses.
Now, the situation is blockage of the retinal veins, and the Doctors have explained I have 4 options: 1. Do nothing and maybe it will improve on its own (with the potential of generating the veins that cause glaucoma) 2. Have a drug injected into the fluid of the eye, which tests have proven to have immediate improvement on the vision. 3. Have steroids injected into the eye (which results show enhances glaucoma). 4. Have surgery with no real encouragement it will help due to the microscopic blood vessels and a very tough location.
I am presently considering these options. Has anyone out there experienced any of the treatments and can give some feedback?
Thanks very much.
Posted by: ted (1 comments) at February 3, 2007 7:22 PM
Ted: I can’t help you but there are a number of perspectives from patients here. They also have a mailing list.
Best of luck.
Posted by: Zack (1792 comments) at February 13, 2007 3:57 PM | PGP Sig
Zach,
I am 27 and was just diagnosed with CRVO in my right eye as well and sounds just like yours did when it first started. Is your vision normal now? How long did it take? You didnt totally lose vision in that eye when it happened right, just floaters and weblike? Any info would be great. Thanks.
Jaclyn
Posted by: Jaclyn (1 comments) at March 28, 2007 5:33 PM
Jaclyn:
Is your vision normal now?
Yes.
How long did it take?
About 3-4 months.
You didnt totally lose vision in that eye when it happened right, just floaters and weblike?
It started with floaters and then became a web, but I never lost vision in my eye.
Best of luck to you.
Posted by: Zack (1792 comments) at April 5, 2007 3:56 PM | PGP Sig
Zack,
I am 39 years old and have CRVO in my right eye. I have been dealing with it now for over 4 months with no improvement. I have the best doctor in LA and says I have no real options except to wait it out. Which is so frustrating.
So far I have had 2 injection on ANVISTON ( it clears up the fluid over the retina) but only improves my vision for a week at best. Not worth the discomfort of a “needle in your eye”.
My right eye is so blurry that sometimes I feel like I am cross eyed. I have thought of wearing a patch until this passes. What did you do to read, watch tv etc.
Thanks for any help!
Joe
Posted by: Joe (1 comments) at May 5, 2007 6:55 PM
Joe: The dark web in my right eye bothered me but it was still possible to read or watch TV. I had to cut down on the reading quite a bit though as it was cumbersome.
Best of luck!
Posted by: Zack (1792 comments) at May 8, 2007 11:32 PM | PGP Sig
I am a guy aged 56 - fit sporty and not overweight and one day 3weeks ago, quite suddenly, lots of floaters in my left eye and then the classical blurring - and wow.. is it scary!!!
I have had Crohns and Sarcoidosis and hope this may be a clue to finding a cure -has anyone had any experience with prednisolone??
Posted by: Jim (1 comments) at June 3, 2007 5:37 PM
Jim: Best of luck!
Posted by: Zack (1792 comments) at June 19, 2007 2:54 PM | PGP Sig
I have been diagnosed with CRVO just this past Monday. I’m a 32 yr. old female. I’m healthy and have no medical problems. I have been so scared with all that is going on with me. It all started while I was driving. With today I going on 19 days with this problem. I went to see an eye specialist who sent me to get a full physical, CBC and MRI because he had diagnosed me with Papaledema. Everything came out negative. He sent me with a Retina specialist who said I had CRVO and he sent me to a Hematologist for more testing. The Hematologist said he didn’t find anything and sent me to do a blood test that was more detailed to determine if my blood was to thick or to see what caused this condition. All I get from the Dr’s is that I have a unique case do to my age and condition and don’t understand the source of this all. I get no answers. I was put on eye drops and baby aspirin till my results come in and a week from now I get to see the retinal specialist. I’m so frustrated and so depressed. My vision is very important to me and I don’t want to lose it. Counting next week it will be 27 days with this problem and only 14 days with only eye drop medication. I cannot see through my left eye. Well, I can see a frame at a distance but not the middle of the whole picture. In just this time my vision has worsen and the cotton or wool spots have increased. What do you think? Will I be able to recover as you did? Is this part of what you went through? Should I just wait or should I see someone else?
Posted by: Rosie (1 comments) at August 30, 2007 12:33 PM
Rosie: Best of luck!
Posted by: Zack (1792 comments) at September 3, 2007 12:04 AM
Hi Zack,
I am from India,and now for the past 5 days only I suffer from Non Ischemic CRVO in my left eye.I have never had any eye problems in my life at all.I just have a slight blurred vision in my left eye.
When I consulted the doctor they themselves were astonished that how come I could get this Non Ischemic CRVO at a very young age of 25.I have also taken scanning and Angiography and given lots of blood tests.My treatment is yet to start.
How are you feeling now?Has it got cured?Are you having Non Ischemic CRVO or Ischemic CRVO ?????????
Posted by: Krithika (2 comments) at December 13, 2007 9:28 AM
Krithika: I had non-ischemic CRVO and it got resolved by itself after a few months.
Best of luck!
Posted by: Zack (1792 comments) at December 15, 2007 11:16 PM
Hi Zack,
Thank You.Have a nice day.
Posted by: Krithika (2 comments) at December 16, 2007 2:05 AM
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dude, that sucks!