Procrastination

What good news! :-)

Speedy recovery!

I can relate. I have macular degeneration in my left eye, which my ophthalmologist calls “idiopathic,” which just means that nobody knows why it happened to me in my early 30s. It is the leading cause of blindness among seniors.

Zack: Good stuff, alhamdulillah. =)

Good news.

Zack,
You are one lucky guy!Do you know how serious CRVO is.You are incredibly blessed to regain your vision quickly-particularly without any loss of central vision(due to damage to the macula).
I have been to Dr.Weiss in Florida-I live in Ireland-yes that country beside England not any part of Florida.Whilst I have gained some benefit I am doubtful if I can regain my vision totally.
Good luck to you and yes follow up on the blood work etc.It will probably be inconclusive-it was for me.I was a healthy male in my mid-40s when it struck in 2002.No explanation either!

Ben Daly,
Dublin,
Ireland.

Hi Zack,

Hope you are better now with very good vision. I am 28 years old and getting on with life. One morning I got up and my one eye was blurred. To make the story short, I went to see an eye specialist PDQ in London where I live, and she diagnosed CRVO. All the comments I’ve read here in your site are the same with what she said. It’s been nearly 2 months now and my eye’s no better. Still, my faith in God is strong and I hope this eye will improve it’s vision again. Tomorrow, I will go the the eye hospital first thing in the morning because I can now see floaters whereas before it was just blurred.

Good luck!

Hello Mr Dr.
I am glad to can find you to send E.mail for help me .
I am 24 years old and live in Iran . 1 year ago I became seek and was in hospital for 90 days.
my problem is : PT and PTT out of renng . C . B . C diff : W.B .C 2000 PLT :90000
hematury and other problems .
Ibecame chemicall trophy by andoxan and use the methylprednisolon IV
Now Hematologist in Iran could not diagnose for me.
The result of this prablem :bleeding Kidneys and other bleeding.
PT test of me not control . and you know internal bleeding is dangrous .
Would you please help me . I am young yet and I like my life.
could I come England for work up ?
Tanke you for your helping .
Goodby.
a_nazari66@yahoo.com

My wife has CRVO in her right eye since 4 months.Initially her vision was blurred but later she started noticing dark floating spots.We went to see doctor in Baltimore U.S.A and he advised not to do anything at present since left eye is fine at this time.Any procedure to improve the right eye might affect the right eye so we decided to follow up in every 2 months , but all of sudden one morning she had headache and complained about some sharp feeling to her both eyes same like we feel while cutting onions and now she feels more pressure from both eyes to see any object.We are suspecting that her second eye also got affected.Looks like doctors also do not have enought information on this problem and they are not very confident about the cure.Only god knows whats happening.Please provide me the useful information as we are in totally dark , not able to figure out what to do in such case.

I will be traveling to the UK at the end of April until the end of May, 2005. I need the name and phone number of a good retinal specialist in London and Cornwall, if possible. Presently, my vitreous is detaching from my retina. My eye surgeon (in the U.S.A.) has told me that there are excellent opthalmologists on England if I need to see one. If you could supply me with a name of a retinal specialist/surgeon, that would be most welcome.

Thank you

I was diagnosed with a crvo after being punched in the eye. Sometimes I wonder if this really is the cause. I am 42 in good health and have had tons of blood work done to rule out anything else. My vision is blurred but the thing that worries me is one day the vision seems real good and I can see pretty normal then the next day it is blurred again.

Denise

Hi,
Like you I have CRVO but in in left eye. Almost no sight in that eye (around 2%). I am under a wonderful specialists and after almost two years of monthly visits, has no decided to replace the lense in my “good” eye. My sight in the “good” eye is down to 50% so anything that will improve my vision is better then nothing. I have recently become a grandmother (at long last) and have difficulty in seeing my grandson, so hopefully the operation will change all of this. I never realised how important sight was until I lost it. I thank God each day that I at least can still see the sun rise and set. I look forward to receiving comments from anybody who has had their lens replaced and knowing how long it took to regain full vision abain.

hello,I have a sclerodermia about two years.I use andoxan for five month,please guide me about possible side effect.

Just had CVRO diagnosed. Same experience as above - woke up one morning etc etc. The problem is in my left eye. I am 34 years old and apparantly this is somethig which occurs in older people (I was told 60+). I am completely devastated. My left eye is a complete blur. I would give ANYTHING to have my sight back. My consulant has jsut advised that there is nothing to do. No treatment. Also, my other eye may go the same way. I can’t express how completely depressed it’s made me.
Does anyonte know of any treatment. So far i have been advised to take asporin and drink water. I am the healthiest 34yr old I know. Never drink, never smoke, gym 3 times a week.
There must be someome somewhere who can treat this - Russia, China, somewhere.
Any comment/ideas are welcome. justinroberts007@hotmail.com

Hello…I am a 66 y/o white male who developed CRVO in my left eye about a month ago. Recently I also developed some new floaters and peripheral flashers as I am very near sighted, and realize this is due to tugging on the retina since the vitreous tends to shrink as we get older. I still have vision in my left eye, but the acuity and clarity is not there, and my CRVO seems to be getting worse. I have been told that my eye is evolving and that it may take up to 90 days until it either gets better, stays the same, or gets worse. My vision has not returned to normal since this happened about a month ago. There is a Dr. Weiss in southern Florida who does retinal surgery and injects Tpa into the branches of the central retinal vein to dissolve the clot, and as far as I know, he is the only Dr. who offers this kind of treatment for CRVO. However, it is not without it’s possible complications which can be worse than the original CRVO, and can lead to retinal tears, detachment and blindness. He has a five page website, but he does not indicate the possible complication risk percentage, nor does he talk about the possible complications which can be devastating. I called down there and spoke to someone, but he did not tell me much more than what was on the web site, and I still don’t know anything about the possible complications, so I am going to write Dr. Weiss directly with my questions and concerns with the hope that he will reply, before investing at least 15 grand that may help, or may not, and could make the CRVO worse. You can find his website by punching in CRVO, and his is on top. Look before you leap though, because once it’s done, it’s done, and there are risks of complications that could make it worse. Find a reputable and good eye doctor and surgeon who will take the time to thoroughly check you out and take the time to explain everything to you, as you deserve to have all of your questions and concerns answered. Chances are he will refer you to a good retinal specialist and you wil go from there. I know this because I am a medical professional and have the good fortune of having a good eye doctor and retinal specialist in northern Michigan. Please contact me if you might have further questions that I could possibly help you with. Take care and good luck……Ray.

Friends—hello…
Well, I must say that Zack’s description of CRVO and the relative significance of ischemic- vs nonischemic-CRVO is a right-on condensation of Dr Weiss’ entries on the web. I’d also advise reading Dr Hayreh at U of Iowa, who also comes up if you Google CRVO.
Personally, I became an “eye patient” on 5 Nov 07, at age 69, with what seemed to be a sudden onset of astigmatism in my right eye, being a sort of “squiggle” in horizontal lines in my central visual field.
The next day there was a darkening and a distortion (sort of like a “twisting”) of whatever was in my direct focus. Day 3 presented a blind spot at dead center, with an apparent size like unto my thumbnail at full arm extension. At that time I made an appointment with my optomologist (the man who had two weeks previously examined me for new glasses), and was given a date a week out. By the time of that next exam, ten days since first symptom, the blind spot was becoming translucent, although it had doubled in apparent size. Also, everything within the spot had a definite blue look to it. Dr took some looks, did tests confirming that my peripheral vision was in good order, dilated, and photographed the retina. Then set me up to see the specialist in two weeks. During that waiting time, the “translucency” became “clearer”, and my central acuity improved a bit. The specialist’s diagnosis was that I had an occlusion and his recommendation was that I should see him again in a couple of months.
My own reading on the web gives me the notion that this is a nonischemic CRVO, with good chances that it will correct itself over the next few weeks or months. I believe the “blue shift” has to do with the swelling of the CRV. I think the swelling has “lifted” the fovea, thereby tilting the cones out of their normal configuration. The concurrent tilting of the rods would account for the apparent “astigmatic” effects.
As I write this it has been two weeks since I saw the specialist, and my primary care physician has not yet received a copy of the specialists report. Never the less, I feel quite fortunate, as this situation seems to be less threatening as time progresses.
I believe the blockage of the CRV is partial and will resolve without surgical intervention. It’s kind of a fluke that it even happened at all, since I, as an a-fib patient have been on blood-thinners for several years and have kept a close eye on my pro-time tests.
Anyway,I hope that the level of detail I’ve put into this post will be helpful and maybe even encouraging to some of you out there who didn’t ever want to have to read this. Good luck to all!
Bob

Is there anyone here who ever tried “Retnitin” Retnitin.com that says “An Amazing 100% Guaranteed Treatment for Retinal Vein Occlusion!” Are there any testimonials from this site?

43 yr old white male.
CRVO 28/10/07. Partial blockage of right eye became total blockage 3/4 weeks later.

Perfect health none smoker etc, although high intake of liquirice which seems to be a possible risk factor in itself.

Vision no better than than top line of eye chart. Floaters now present which initially give some hope of something happening but now just a pain in arse!

Under monthly review with appoiuntment with blood doctor next week.

May give this Retnitin a go but would be nice a hear some 3rd party feedback.

Regards all.

Just wanted to mention that there is a good support group at the following URL:

http://groups.msn.com/CRVOSupport

There is a lot of information and many knowledgeable people helping each other cope with this condition.

MAXIDEX WARNING

I had eye surgery and in the post0op pack was MAXIDEX drops by ALCON LABS.

Two days later I was BLIND

Use Google and enter EPOCRATES MAXIDEX to verify